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Russell-Silver Syndrome

Russell-Silver syndrome (RSS) is a rare genetic disorder characterized by a wide variety of symptoms and physical findings that can vary in range and severity from person to person. The characteristic findings are:

• Growth delays before birth and after birth with growth deficiency often resulting in short stature in adulthood
• Unusual, distinctive facial features
• A pinky finger that is fixed or 'locked' in a bent position
• Undergrowth of one side or structure of the body resulting in unequal (asymmetric) growth
• Often normal intelligence but potentially increased risk of learning disabilities

Children's Special Health Services (CSHS) pays for growth hormone treatment and medical food for individuals with Russell-Silver Syndrome.

Individuals through 18 years of age who are diagnosed with this condition and living in North Dakota can enroll in the program without regard to family income.

In order to access services, families must complete an enrollment form.

For more information, please contact Children's Special Health Services at:

Children's Special Health Services
North Dakota Department of Health
600 East Boulevard Avenue, Dept. 301
Bismarck, ND 58505-0200
Phone: 701.328.2436
Toll Free: 800.755.2714
TTY: 800.366.6888
Fax: 701.328.1645
dohcshsadm@nd.gov